One Second from Disaster

Why is it that some people seem to live a charmed life.  Nothing bad ever happens to them—they sail through life with nothing major going wrong.

Why is it that some people seem to live a charmed life.  Nothing bad ever happens to them—they sail through life with nothing major going wrong. That is my one question—why?

I get up in the morning with a vague feeling of anxiety that almost never leaves me. I am not one to feel sorry for myself and hate being on the pity pot. Yet I feel jealous of women with their big cleavages and think about what if they got this damn disease. How about all those women with their big manes of hair, so confident that nothing can touch them. Well, this fucking disease doesn’t care about that and this life is a mine field. You can be going along, all smug, posting your “best life” on Facebook, when suddenly your life as you know it comes to a screeching halt. That is how it is—we are all one second away from disaster.

When my friend Janet got the news that she had MDS (myelodysplastic syndrome) the disease which ultimately killed her, she called it the “train wreck.” That describes it exactly –a feeling of disbelief and confusion. Any faith that you thought you had is shaken. “How could this be?” you ask yourself, knowing that you are not invincible and the grim reaper has come to your doorstep.

Having had the big C 34 years ago, for some strange reason I felt that was it. I was sure that I would never get cancer ever again—that my turn had come and I came through it.  But that’s not the way things work in the world. So, I put my big girl brave face out there and made it my mission to fight this. I was determined to remain positive and I actually did. On the days I had an infusion for 3 hours I actually was in good spirits. I tried to analyze why that was so and I can only surmise that I felt cared for and loved. My friend would come over, bring me lunch, and we would chat. I guess you would say I did not suffer from many chemo side effects so I was lucky (or blessed depending upon where you come from).

I counted down the chemo cycles (I had 6) and posted pictures of me getting the infusion. People responded and I felt loved again. But a strange thing happened after the last cycle—I felt let down and depressed. One would think I would feel wonderful and relieved but I was just the opposite. I didn’t know what to do with myself and I simply felt abandoned. I was no longer special and my purpose in life, which turned out to be just getting through the chemo, was gone. I felt that I lost my purpose. I have been struggling to get that back and I am having a hard time. People don’t understand how I feel—they think I should be happy, happy, and grateful. I am grateful it is over but I am left with the residual fear of having this return. I think crazy thoughts and get into my own head that I somehow have metastatic cancer and I will surely die of this. I have a mammogram next month and my head tells me that I have cancer in the other breast now.  I speak to other cancer survivors and many of them feel like me, so maybe I’m not unique, but I still can’t shake these feelings.

Logically, I know that we must “live in the day” and not the past or future because you miss the beauty of the moment. Yet I catch myself thinking about 10 years down the road sometimes and it is frightening. I engage in the “what ifs” which only increases my anxiety because the future is fraught with those nasty mine fields.

I know this is not exactly a very inspirational piece but this is how I feel. I have kept this inside of myself and whenever someone asks me how I feel, I simply say, “Fine” or “OK” when I really want to say, “I am fucking depressed and anxious”. But nobody wants to hear that—all they want to hear is that you are good so they can feel good too.

Haunting Melody

It’s funny how a song that you haven’t heard since you were a teenager, can suddenly bring you back to a moment in time, good or bad. A while back, I was in Starbucks and I heard a haunting melody that sounded familiar. Upon listening more closely, I realized what I was hearing and I was suddenly transported back in time to the age of 16.

When I was a kid, my friends Janet, Mark, and Billy met the charismatic Richie M. hanging around Playground 12 in Stuyvesant Town. He had two friends, Pat and Tommy and the 6 of us somehow formed a sort of click. Richie was very tall (6’ 3”) and good looking, had dark hair and wore glasses. Conversely, his sidekick and best friend, Tommy was very short, had a pug nose, a big mouth, funny teeth, and was in general not very attractive, although he was a really nice guy who we all loved. I think they had a symbiotic relationship and he lived vicariously through Richie. It was such a contrast—kind of like Mutt and Jeff. But more than Richie’s appearance was his personality—he just had that special “something” that attracted people, mostly girls. The group eventually grew to include others, the sisters who Janet and I privately referred to as “The Bozo Girls” because of their bushy red hair, and a number of other peripherals who came and went. But there was no question who the leader was and that was Richie. I was a total innocent at that time, a good girl, and had never even had a boyfriend. So, naturally I was flattered that the fabulous Richie wanted to hang with us. At first, we were all platonic, but as always happens with males and females, sex gets into the mix. Every other day, it seemed that Richie had a new adoring girl on his arm and I just assumed that I was not “worthy” of Richie’s greatness—I had to be content to worship him on the sidelines like everyone else. So, one would think that since I was lacking a boyfriend, I would jump at the chance when asked to “go out” with someone. But I guess I was still selective, even at that stage in my life. One day, Tommy asked me out and I said I’d think about it—not a good sign. I remember going home and weighing the pros and cons: Pros-He had a part time job at a theater on Broadway and could get me into shows. He made some pretty good money, even at age 17 and could treat me. Cons: I just could not for the life of me picture myself remotely kissing him and unfortunately, that kind of goes with being somebody’s “girlfriend.” The next day I gave him my answer, “NO” and then said those dreaded words that nobody wants to hear, “But we can be friends.”

Then out of the blue, the next day, and unexpectedly for me, Richie asked me out. My answer was an immediate YES, YES! I remember being so shocked but feeling like I had reached the mountaintop and felt “on top of the world.” I literally looked in back of me to see who he was really talking to—it could not be me, of course. But it was and I drifted on top of a cloud when I went home that night and almost had to pinch myself to see if I was indeed awake. Of course, I had no idea what it even meant to be a girlfriend of anyone, let alone a girlfriend of the most sought after boy in Stuyvesant Town. I felt remotely guilty about turning Tommy down the day before, but the guilt didn’t last very long.

Since we lived near the East Village (of Greenwich Village), we would sometimes go over to a discotheque called the Electric Circus, which catered to the younger crowd because they did not serve liquor. One night I remember scrounging around to get the $4 admission fee and we arrived with Richie leading the way. We were all dancing together as a group, and having a great time while colorful amoebas splashed over the walls accompanied by the rhythmic psychedelic music of that time. Suddenly, a slow song came on, and Richie asked me to dance. The name of the song was, “I love you more than you’ll ever know” by Blood, Sweat, and Tears. I almost fell into a trance and for the duration of that song it felt as if there were only two people on the dance floor and in the world. Since he was so tall, I hung onto his waist, with my head leaning against his warm chest, feeling his heart beating, and was only aware of that haunting song and the flashing psychedelic lights across the ceiling and walls. At that moment, I loved him with all my heart and soul, just like the words of that song. Richie was indeed my first love, and my first broken heart because unfortunately that moment in time did not last. But for that night, my dreams came true.