Happy Birthday

My 70th Birthday is tomorrow—Yikes! How did that happen and where did the years go. In February 2021, when I was 68, I got breast CA.

My 70th Birthday is tomorrow—Yikes! How did that happen and where did the years go to?

In February 2021, when I was 68, I was diagnosed with breast cancer. After two surgeries—a lumpectomy and then a mastectomy, I finally started chemotherapy on April 20th.  Two days later was Janet’s 69th birthday. I was feeling OK despite having had my first chemo infusion two days earlier, so when Bill invited me to her birthday party I decided to go. All her kids were there (except John, who has no interaction with his father), and they had a cookout. I managed to eat a hot dog, hamburger, and salad. The whole time I was there, Janet sat in her living room rocker, bundled up in a blanket. She was always cold because she had no meat on her—she was skin and bones. Everybody kept asking, “Mom, come and eat” at which she waved her hand in disgust, as if we were offering her worms, so she never had one bite. I started to speak to her when I first got there, and she conspiratorially said to me that she couldn’t talk because Bill would hear her. I told her that Bill was outside cooking with two doors closed and she still said her famous, “He has big ears.” I asked if he had bionic hearing, and she didn’t answer me.

I was told that day that the stem-cell transplant done for her MDS had basically stopped working and she had developed leukemia. Bill was talking about getting her another stem-cell transplant and the kids and I looked at each other with a silent acknowledgement that this was a crazy idea: that putting her through that horrific regimen would be a total mistake, and for what?  She had severe dementia at this point and I’m not sure how she got it but apparently, she had been in a steady decline for several years, according to April.

Fast forward to July 2021: April told me that she was not doing well. At first, she was in the hospital and Bill, in his hope to prolong her waning life, was still almost force-feeding her. This caused a huge rift between the kids, especially April and Bill. April just wanted him to stop trying to keep her alive and just let her go and he refused, thinking (selfishly) that he just didn’t want to say goodbye. Finally, they got her in home hospice with a hospital bed for the living room and that is where she stayed until she passed. At first April told me that it would not be a good idea for me to visit her since she was sleeping most of the time, but one day she texted and said if I wanted to, I could come over to the house that day because she was somewhat awake. I went over and she actually recognized me which gave me some solace. She was in and out of consciousness at that point and the hospice nurse said it could be any time. We were essentially on death watch. I don’t know the exact date that she died, but it was around July 20st or so. But on July 23rd her funeral was held. I know this so well because it was the day before my birthday. At that point I didn’t mourn her the way I would’ve if she had died suddenly, because she had been slipping away from me gradually over a period of years.

So, today, July 23, 2022, is a whole year since her funeral. She never even made it to 70. We used to joke that we would be in a nursing home and still trying to sell houses (that thing we did for a few years, among others, when I moved here}.

Now here I am, alone—my two best friends, Janet and Jane, have left me. I am now on the cusp of my 70th birthday and I feel so lost without them. Jane died a few years before, of what I do not know. She had MS, a heart condition, and diabetes, and she wasn’t even that old. When she died, I was so upset and devastated because I had just spoken to her recently and she seemed like she was doing well. Her family had all but abandoned her and they never even had an autopsy done to determine the cause of death. I suspect it was a heart attack. But the building super got into the apartment when nobody had seen her for a few days and found her. She was only 63.

I feel like a survivor, having gone through so much in my 60s, namely the horrific spinal tumor on T3 of my spinal cord, which prevented me from walking properly, and had constant nerve pain, a partially paralyzed thin right leg, which was cold to the touch from the knee down, etc. It was a nightmare and lasted for 4 months until it was diagnosed and I had surgery. Luckily, the tumor was benign as meningiomas usually are. Then there was the recent cancer diagnosis, and everything related to that—and here I still am—Still Standing (as Elton John’s song goes). Then of course there was the constant trauma due to having a mentally ill adult child living in the street.

I have been stressed and depressed about the idea that I would be officially OLD as DIRT, but now that the day has almost arrived, it is OK. I have a sense of relief that I basically look the same as I did last year and haven’t changed much. I always thought that when you turned 70, you were officially OLD and turned into a pumpkin. Wow, how that has changed. I see people like Becky who will be 75 in August, and she is on the go travelling all the time. She has an amazing zest for life that I wish I had. I asked her how she felt to be in her 70s and she said she loves it. Conversely, Margie will be 70 in December, and she said it didn’t bother her at all.

As of this writing, things have gotten infinitely better: I finished chemo and am on drugs to just prevent recurrence. I am grateful that it was Stage 1 and not metastatic and we want to keep it that way. Joseph has a subsidized apartment now (although he still has crazy thinking), he is on meds, seeing a shrink and therapist, and sounds somewhat sane when I speak to him (but not always). David now speaks to his dad, and Joseph which is monumental.

Yes, hopefully this next part of my life will be easier with less problems. But life is life and there are no guarantees that things will go smoothly, but if I keep on trucking, going forward one day at a time, try not to get bogged down with the small things (which is not always easy), try not to compare and feel jealousy (which is sometimes my nemesis), I may find that I can get through and maybe just maybe be happy. Happiness is something I almost never feel, but every once in a while, it comes over me when I am outside on a sunny warm day walking in the morning. It is sudden and swift and surprises me. It’s as if a ray of sunshine has opened up in my soul and I can breathe for a little while. The trick is keeping that feeling for more than just a few minutes. Maybe this is the decade that I will finally find the elusive and lasting feeling of happiness for no special reason other than just being alive.

One Second from Disaster

Why is it that some people seem to live a charmed life.  Nothing bad ever happens to them—they sail through life with nothing major going wrong.

Why is it that some people seem to live a charmed life.  Nothing bad ever happens to them—they sail through life with nothing major going wrong. That is my one question—why?

I get up in the morning with a vague feeling of anxiety that almost never leaves me. I am not one to feel sorry for myself and hate being on the pity pot. Yet I feel jealous of women with their big cleavages and think about what if they got this damn disease. How about all those women with their big manes of hair, so confident that nothing can touch them. Well, this fucking disease doesn’t care about that and this life is a mine field. You can be going along, all smug, posting your “best life” on Facebook, when suddenly your life as you know it comes to a screeching halt. That is how it is—we are all one second away from disaster.

When my friend Janet got the news that she had MDS (myelodysplastic syndrome) the disease which ultimately killed her, she called it the “train wreck.” That describes it exactly –a feeling of disbelief and confusion. Any faith that you thought you had is shaken. “How could this be?” you ask yourself, knowing that you are not invincible and the grim reaper has come to your doorstep.

Having had the big C 34 years ago, for some strange reason I felt that was it. I was sure that I would never get cancer ever again—that my turn had come and I came through it.  But that’s not the way things work in the world. So, I put my big girl brave face out there and made it my mission to fight this. I was determined to remain positive and I actually did. On the days I had an infusion for 3 hours I actually was in good spirits. I tried to analyze why that was so and I can only surmise that I felt cared for and loved. My friend would come over, bring me lunch, and we would chat. I guess you would say I did not suffer from many chemo side effects so I was lucky (or blessed depending upon where you come from).

I counted down the chemo cycles (I had 6) and posted pictures of me getting the infusion. People responded and I felt loved again. But a strange thing happened after the last cycle—I felt let down and depressed. One would think I would feel wonderful and relieved but I was just the opposite. I didn’t know what to do with myself and I simply felt abandoned. I was no longer special and my purpose in life, which turned out to be just getting through the chemo, was gone. I felt that I lost my purpose. I have been struggling to get that back and I am having a hard time. People don’t understand how I feel—they think I should be happy, happy, and grateful. I am grateful it is over but I am left with the residual fear of having this return. I think crazy thoughts and get into my own head that I somehow have metastatic cancer and I will surely die of this. I have a mammogram next month and my head tells me that I have cancer in the other breast now.  I speak to other cancer survivors and many of them feel like me, so maybe I’m not unique, but I still can’t shake these feelings.

Logically, I know that we must “live in the day” and not the past or future because you miss the beauty of the moment. Yet I catch myself thinking about 10 years down the road sometimes and it is frightening. I engage in the “what ifs” which only increases my anxiety because the future is fraught with those nasty mine fields.

I know this is not exactly a very inspirational piece but this is how I feel. I have kept this inside of myself and whenever someone asks me how I feel, I simply say, “Fine” or “OK” when I really want to say, “I am fucking depressed and anxious”. But nobody wants to hear that—all they want to hear is that you are good so they can feel good too.

Miracles

Miracles can come in all shapes and sizes; the trick is recognizing them. I don’t think that miracles have to be huge–sometimes they happen very quietly, and would go unnoticed by anyone else other than the recipient. An example of an amazing miracle for me was, after months of physical deterioration and suicidal hopelessness, the culprit of my symptoms was finally discovered. The ensuing surgery and recovery over the past year has been nothing short of miraculous. Just walking, having balance, working out vigorously, driving without fear, are activities that others take for granted, but I am in awe. Sometimes miracles come in baby steps. After being diagnosed with a potentially terminal illness, my wonderful friend Janet was at the point of giving up. She was having chemotherapy to hopefully prepare her for a possible stem cell transplant, but her blood counts were not good. But shortly afterward, she called me with great news–it seems her blast counts had dropped to the right level, clearing the way for her stem cell transplant. Now, about two months post transplant, she is doing amazingly well with her new immune system (acquired from her formally estranged brother). It has been a long haul but if that is not a miracle, then I don’t know what is. My friend Jane, who has MS, has been suffering from swollen feet for four months, which was a big mystery to her many doctors. She finally put the puzzle together and learned from the pharmacist that a drug she was taking (which she didn’t even need) was the cause. The swelling is abating gradually, which is a real miracle. If you look around you will see miracles in your every day life. But recognizing them when they are not the burning bush variety doesn’t always happen.

Adversity Teaches Empathy

It is amazing that so many people take for granted being well and feeling well. There is nothing more humbling than having a debilitating illness or injury to bring you back to earth. I have been one of those athletic people who would look at someone struggling in the gym or out just walking slowly, without trying to understand that each person has a story. I have been struggling for many months with debilitating back pain and severe degenerated right knee. My back and knee pain was so bad that I would have to hobble from bed into the bathroom each morning, walking like I was 85. The constant, unrelenting pain and soreness also affected my state of mind, causing depression. It is so hard to look at the bright side of things when you are hurting over and over and life looks so bleak. It was so humbling and embarrassing on my trip to Guatemala. On the plane I would start to get anxious when we were about to land knowing that my back and knee would be so stiff that it would take a while for me to unbend. Getting up and carrying my luggage out of the plane was torture. I always thought of myself as this physically fit specimen and now I felt like a cripple, limping down the aisle. Things that I used to take for granted, like climbing down the steps of the airplane (in Augusta for some reason you have to climb down these stupid steep steps to get off the plane) caused me so much anxiety—being so afraid that I would fall or need assistance. When you are physically well, things like that don’t even occur to you. Now things that were never issues were now major concerns. Once in Guatemala, I was in constant pain, living on Ibuprofen. It prevented me from going on walking tours and, coupled with me being lonely, I was miserable. When I went on a tour to Panajachel I had to constantly climb in and out of the boat that ferried us from village to village on Lake Atitlan and that was pure torture. Once if it had not been for two guys holding me, I would have collapsed, due to my knee totally buckling under me. Back in the States, it did not get any better and I have since had knee surgery (much more extensive than I thought it would be) and have also had epidural steroid injections to my back. I want to travel now, but I was unable to plan for anything due to the constant uncertainty of my physical condition. Whenever there is a life altering event, whether it be a loss of a job, illness, death, divorce, you always look for a reason. The thing is that I feel there are no coincidences in God’s world and it may not be revealed until years later or weeks, you do not know. I am slowly starting to feel better but being so debilitated gave me real empathy for others. When I see people hobbling slowly across the street I know that there is a story behind it. I have a friend who suffers from MS and is on disability. She is estranged from her family who is totally unsupportive, yet she still perseveres. Another woman I went to school with just finished battling stage 4 uterine cancer, having gone through hell with chemotherapy, major surgery, colostomy, and having to rely on others since she lives alone. Then I look at myself and realize that maybe it is not that bad. Of course, when you are feeling better it is easy to look back and say it was not so bad. I am still having problems with numbness in my body, but maybe this is God’s lesson for me; be grateful for each day that you feel well and don’t take it for granted. It has given me a better understanding of other’s problems and pain, physically and mentally. Nobody has a perfect life, although sometimes it seems that some people do on the outside. It has also given me more of an incentive to change my life because I can appreciate that there are no guarantees that you will be around tomorrow or even later in the day. We take for granted that we have an infinite amount of time to achieve that elusive happiness and that is not true. My friend Janet is now in France with her husband, one among many trips they take. They are living now, not putting off what may never happen if they waited. Being so ill has put a time frame to my plans. I know that I absolutely cannot continue to live a life doing what I don’t want to do. I ask myself sometimes, “when are you most happy.” The answer always comes back, “when I am not at work.” It is time for me to move on to the next phase of my life. I am so consumed with making money due to my upbringing (compulsive gambler dad) when money went flying out the window and life was insecure, that now it is my main focus. Yes, money does buy things I like, but continuing doing what I don’t want to do is killing me over and over. One day I will wake up and it will be my last day on earth and I will die never having taken the big risks and living a life of my dreams and how sad is that?